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Smooth Brain Society
In an attempt to change the way information is presented, we’ll be speaking to researchers, experts, and all round wrinkly brained individuals, making them simplify what they have to say and in turn, hopefully, improving our understanding of a broad range of topics rooted in psychology. Join us as we try to develop ourselves, one brain fold at a time.
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Smooth Brain Society
#59. Understanding Autism - Dr. Calum Hartley
Autism, or autism spectrum disorder (ASD), refers to a broad range of conditions characterized by challenges with social skills, repetitive behaviors, speech and nonverbal communication. Dr. Calum Hartley of Lancaster University talks us through ASD and come of the misconceptions people have about it. We cover Dr. Hartley's research on language development in children with autism and cover some other research with regards to the negative interactions people with autism often face in the criminal justice system.
Dr. Calum Hartley: https://www.lancaster.ac.uk/psychology/about-us/people/calum-hartley
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Smooth Brain Host 1 (00:00:04):
Welcome everybody to the Smooth Brain Society.
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Today,
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we will be talking to Dr.
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Calum Hartley,
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who is a senior lecturer at the Department of Psychology at Lancaster University.
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His main focus is on the communication and social cognition in autistic children and adults.
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So by that, you would have realized this podcast is going to be talking in general about autism.
Smooth Brain Host 1 (00:00:27):
And for people who are new to the show,
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the way it works is there's me,
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there's our guest,
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our wrinkly-brained expert,
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Calum.
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And we also have a co-host to help us along on this journey who has no real idea of
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what our expert Calum does.
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And for that, we have Neil Morrison in.
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I'll let Neil sort of introduce himself very quickly.
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Sure.
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I'm Neil Morrison and I work at Lancaster University as well, but not as a researcher.
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I work as public engagement officer.
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So I take all the wrinkly brains and hopefully smooth them out a little bit so we
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can go and talk about people like Calum's research to the general public here.
Smooth Brain Host 1 (00:01:08):
Awesome.
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And yeah, of course, welcome Calum to the Smooth Brain Society.
Dr. Calum Hartley (00:01:13):
Thank you.
Dr. Calum Hartley (00:01:13):
Pleasure to be here.
Dr. Calum Hartley (00:01:14):
Cheers for the invite.
Smooth Brain Host 1 (00:01:16):
Yes.
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All right.
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So let's start from the beginning in the sense I said we will be speaking about
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autism or autistic children and adults.
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So for our listeners,
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for our few viewers on YouTube,
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could you please give us an insight into what autism is?
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Yeah.
Dr. Calum Hartley (00:01:35):
So autism is a neurodevelopmental condition that a person is born with.
Dr. Calum Hartley (00:01:41):
So by neurodevelopmental, it means that it originates in the brain.
Dr. Calum Hartley (00:01:46):
And it's not like there are any specific genes that we know determine autism.
Dr. Calum Hartley (00:01:51):
There are lots of genes associated with autism.
Dr. Calum Hartley (00:01:54):
And it's a condition that's characterized by differences in social...
Dr. Calum Hartley (00:01:58):
understanding,
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social interaction and communication,
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as well as some differences in behavior and also interests as well.
Dr. Calum Hartley (00:02:08):
And these are characteristics that will be present for an individual throughout
Dr. Calum Hartley (00:02:12):
their lifetime,
Dr. Calum Hartley (00:02:14):
but they can change as well over the course of their lifetime as well.
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So can I ask something then, Callum?
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Because when I think of autism as someone who knows nothing about it,
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I often hear the autistic spectrum.
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And you also hear people talk about, oh, well, everyone's on the spectrum somewhere.
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So clearly it's not progressive isn't the word, is it?
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But a disease with different effects of different things.
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I've always wondered where does the spectrum start?
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Is there like a definition point?
Dr. Calum Hartley (00:02:46):
So one point of contention you just mentioned as a disease.
Dr. Calum Hartley (00:02:52):
And that's quite an old fashioned way of thinking about autism.
Dr. Calum Hartley (00:02:58):
It's considered as a difference, a difference that can vary in its impact on a person.
Dr. Calum Hartley (00:03:05):
And the spectrum component of it is really, really key.
Dr. Calum Hartley (00:03:09):
Right.
Dr. Calum Hartley (00:03:11):
All autistic individuals are truly unique.
Dr. Calum Hartley (00:03:14):
And whilst we know that there are certain characteristics that are common across
Dr. Calum Hartley (00:03:21):
individuals who are autistic,
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the presence and the intensity with which those characteristics manifest themselves
Dr. Calum Hartley (00:03:29):
can really vary a great deal.
Dr. Calum Hartley (00:03:31):
So the way in which autism is assessed and identified is that,
Dr. Calum Hartley (00:03:35):
well,
Dr. Calum Hartley (00:03:35):
essentially we have lists of criteria behaviour that are known to be associated
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with autism,
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but not everyone who is autistic checks all the same boxes in terms of the
Dr. Calum Hartley (00:03:45):
presentation of those behaviours.
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So this results in a lot of variability across the autism spectrum.
Dr. Calum Hartley (00:03:53):
So as I said,
Dr. Calum Hartley (00:03:54):
there's differences in the presence,
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what kinds of behaviors and cognitive characteristics are present,
Dr. Calum Hartley (00:04:00):
and also their intensity.
Dr. Calum Hartley (00:04:02):
So there are some folks who are autistic,
Dr. Calum Hartley (00:04:06):
who their cognition,
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so their nonverbal intelligence,
Dr. Calum Hartley (00:04:12):
their language abilities develop very much in line with their chronological age.
Dr. Calum Hartley (00:04:20):
So they don't have any intellectual disabilities or anything like that.
Dr. Calum Hartley (00:04:23):
But there are other folks at the other end of the spectrum who do and can have
Dr. Calum Hartley (00:04:28):
really quite profound intellectual difficulties,
Dr. Calum Hartley (00:04:31):
can have really profound language learning difficulties.
Dr. Calum Hartley (00:04:36):
So some folks who are autistic won't speak or are minimally speaking and also
Dr. Calum Hartley (00:04:43):
engage in very different kinds of behaviours as well.
Smooth Brain Host 1 (00:04:48):
Okay.
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Okay,
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so from that,
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I'm getting sort of that the autism spectrum is more about a spectrum of sort of
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symptoms you see as opposed to everyone's on the spectrum.
Dr. Calum Hartley (00:05:00):
That's right.
Dr. Calum Hartley (00:05:01):
And to be honest, that idea that everyone is on the spectrum isn't a helpful idea, I think.
Dr. Calum Hartley (00:05:10):
Many of the characteristics that you see in autism...
Dr. Calum Hartley (00:05:14):
are or can be present in neurotypical individuals who aren't autistic but the way
Dr. Calum Hartley (00:05:20):
in which they manifest themselves often has a more challenging impact on the life
Dr. Calum Hartley (00:05:27):
of a person who is autistic whereas they're not so much of a an issue for someone
Dr. Calum Hartley (00:05:34):
who is is neurotypical and a good way of thinking about autism these days
Dr. Calum Hartley (00:05:40):
is like in my lectures, I show color wheels, right?
Dr. Calum Hartley (00:05:44):
So you've got all the spokes represent different kinds of characteristics that we
Dr. Calum Hartley (00:05:48):
know to be associated with autism.
Dr. Calum Hartley (00:05:51):
And they can differ in terms of whether those spokes light up
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and how much they light up, indicating the intensity of those characteristics.
Dr. Calum Hartley (00:06:00):
And also on that slide,
Dr. Calum Hartley (00:06:02):
I show two different versions of the color wheel with different spokes and
Dr. Calum Hartley (00:06:05):
different lights and different intensities.
Dr. Calum Hartley (00:06:07):
And they both represent autistic individuals,
Dr. Calum Hartley (00:06:10):
but they just differ in terms of their experiences of autism and their particular
Dr. Calum Hartley (00:06:15):
unique set of characteristics.
Smooth Brain Host 1 (00:06:22):
So I guess
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Oh,
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in the introduction,
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I sort of,
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and you also alluded to language as a characteristic,
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what are sort of the other ones?
Dr. Calum Hartley (00:06:32):
Yeah,
Dr. Calum Hartley (00:06:32):
so when we are assessing autism,
Dr. Calum Hartley (00:06:38):
it's funny actually,
Dr. Calum Hartley (00:06:38):
language learning difficulties are a really common characteristic of autism,
Dr. Calum Hartley (00:06:44):
but these days they're not actually a diagnostic criteria.
Dr. Calum Hartley (00:06:48):
They are one of the things that parents identify and or makes
Dr. Calum Hartley (00:06:52):
parents seek a diagnosis or an assessment for their child,
Dr. Calum Hartley (00:06:55):
but they're not inherent to autism,
Dr. Calum Hartley (00:06:58):
right?
Dr. Calum Hartley (00:06:59):
There are lots of autistic individuals who have really fantastic language skills,
Dr. Calum Hartley (00:07:04):
hyper fluent and yeah,
Dr. Calum Hartley (00:07:06):
really great communication.
Dr. Calum Hartley (00:07:08):
uh the core areas of for assessment are differences in social interaction so these
Dr. Calum Hartley (00:07:15):
sorts of behaviors might relate to eye contact for example so often autistic
Dr. Calum Hartley (00:07:19):
individuals will not make as much eye contact in communication um sometimes it can
Dr. Calum Hartley (00:07:26):
be anxiety inducing for autistic individuals to to um gaze um although that being
Dr. Calum Hartley (00:07:33):
said
Dr. Calum Hartley (00:07:34):
There are social strategies sometimes autistic individuals implement and it might
Dr. Calum Hartley (00:07:38):
be that they can overcompensate and might make sometimes make more eye contact than
Dr. Calum Hartley (00:07:43):
than you would expect.
Dr. Calum Hartley (00:07:44):
But there's differences as well in for some autistic individuals.
Dr. Calum Hartley (00:07:51):
sensitivity and desire to engage in social interactions.
Dr. Calum Hartley (00:07:56):
So early on in life,
Dr. Calum Hartley (00:07:57):
sometimes children just,
Dr. Calum Hartley (00:07:59):
they don't seem as keen to socialize as their neurotypical peers,
Dr. Calum Hartley (00:08:04):
and they don't seem to be getting the same reward out of social interactions and
Dr. Calum Hartley (00:08:09):
social feedback.
Dr. Calum Hartley (00:08:10):
Sometimes kids might not respond to their name and this can lead parents to
Dr. Calum Hartley (00:08:15):
potentially think that their child is deaf.
Dr. Calum Hartley (00:08:17):
And this is because the child just isn't spontaneously orientating towards social
Dr. Calum Hartley (00:08:21):
stimuli in the same way.
Dr. Calum Hartley (00:08:24):
Differences in what we call joint attention.
Dr. Calum Hartley (00:08:27):
So joint attention is shared attention.
Dr. Calum Hartley (00:08:31):
So if I point towards something in the environment and you direct your attention to
Dr. Calum Hartley (00:08:37):
that and I'm looking at that and we're having this shared
Dr. Calum Hartley (00:08:40):
experience or kind of sensory input, autistic individuals make fewer bids for joint attention.
Dr. Calum Hartley (00:08:49):
They often won't try to manipulate a caregiver's attention in the same way,
Dr. Calum Hartley (00:08:54):
or they're also less receptive to joint attention.
Dr. Calum Hartley (00:08:58):
So they would be less likely to follow other people's bids.
Dr. Calum Hartley (00:09:03):
And also you have restricted and repetitive behaviors and interests.
Dr. Calum Hartley (00:09:08):
That's the other core domain when it comes to assessing autism.
Dr. Calum Hartley (00:09:13):
And this often presents itself as
Dr. Calum Hartley (00:09:18):
or it can represent itself in lots of different ways.
Dr. Calum Hartley (00:09:20):
You've got repetitive behavioral movements.
Dr. Calum Hartley (00:09:24):
So sometimes that will be in the physical character, like physical movements of an individual.
Dr. Calum Hartley (00:09:31):
Sometimes you see,
Dr. Calum Hartley (00:09:34):
sometimes there's like moving of the hands and this can serve different functions.
Dr. Calum Hartley (00:09:39):
It can be soothing.
Dr. Calum Hartley (00:09:41):
It can help reduce anxiety.
Dr. Calum Hartley (00:09:45):
as well as generating a sort of a sensory stimulation that might actually be
Dr. Calum Hartley (00:09:50):
providing some kind of positive reinforcement for the individual.
Dr. Calum Hartley (00:09:54):
You've got an adherence to often routine and liking predictable sort of routines to
Dr. Calum Hartley (00:10:05):
follow and understanding how to structure the day.
Dr. Calum Hartley (00:10:09):
And really understanding if I perform this action,
Dr. Calum Hartley (00:10:12):
I know what's going to happen next and being able to predict,
Dr. Calum Hartley (00:10:17):
essentially predict what's going on and what's going to happen next.
Dr. Calum Hartley (00:10:20):
And also you have special interests.
Dr. Calum Hartley (00:10:23):
So most autistic individuals have a topic that is really, really, really fascinating for them.
Dr. Calum Hartley (00:10:33):
These can be hugely diverse and often the individual's sort of knowledge and
Dr. Calum Hartley (00:10:39):
enthusiasm for this area or this particular topic might exceed their knowledge and
Dr. Calum Hartley (00:10:45):
understanding of other things more generally.
Dr. Calum Hartley (00:10:48):
So thinking about some of the children that I used to work with who did have really
Dr. Calum Hartley (00:10:53):
quite profound language learning difficulties.
Dr. Calum Hartley (00:10:56):
um they might have had exceptional knowledge in in this one one area that would be
Dr. Calum Hartley (00:11:04):
far greater in depth than than sort of general educational level interesting so did
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you say it was entirely genetic Callum or is there an environmental factor behind
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it as well because I'm guessing you'll it's the parents who presumably notice if
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child
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if they think he or she is autistic.
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I guess two, three-ish, somewhere around there when they probably begin to talk.
Smooth Brain Host 2 (00:11:30):
But is there then an environmental impact of where the child is that changes autism
Smooth Brain Host 2 (00:11:36):
or is it purely genetic?
Dr. Calum Hartley (00:11:39):
So it's a genetic condition.
Dr. Calum Hartley (00:11:43):
We know that because there is a heritable component of it.
Dr. Calum Hartley (00:11:47):
So we know that if...
Dr. Calum Hartley (00:11:52):
In a family,
Dr. Calum Hartley (00:11:52):
a newborn infant has an older sibling who is already known to be autistic,
Dr. Calum Hartley (00:12:01):
or if parents are autistic,
Dr. Calum Hartley (00:12:02):
there's an increased likelihood of that infant themselves
Dr. Calum Hartley (00:12:06):
being identified as autistic um there there isn't any evidence for the way like
Dr. Calum Hartley (00:12:14):
parenting practices or the way environments in which a child is raised none of that
Dr. Calum Hartley (00:12:19):
reliably uh predicts the onset or assessment or identification of autism so it is
Dr. Calum Hartley (00:12:25):
very much a genetic condition we just don't know the gene i think
Dr. Calum Hartley (00:12:30):
Yeah, we just don't know the gene.
Dr. Calum Hartley (00:12:32):
And because of the variability within the population,
Dr. Calum Hartley (00:12:34):
it's probably that it's really polygenetic.
Dr. Calum Hartley (00:12:37):
There's lots of interactions between different genes.
Dr. Calum Hartley (00:12:41):
And this results in the variability in cognition and behavior and so on.
Dr. Calum Hartley (00:12:47):
There are certain prenatal factors,
Dr. Calum Hartley (00:12:49):
like environmental factors,
Dr. Calum Hartley (00:12:51):
that we know to increase the likelihood of autism occurring.
Dr. Calum Hartley (00:12:56):
So maternal age.
Dr. Calum Hartley (00:12:59):
for example.
Dr. Calum Hartley (00:13:01):
And I read a paper recently that talked about certain conditions during pregnancy.
Dr. Calum Hartley (00:13:09):
So if there's a threatened miscarriage,
Dr. Calum Hartley (00:13:11):
for example,
Dr. Calum Hartley (00:13:11):
that's associated with increased likelihood of the infant being autistic.
Smooth Brain Host 1 (00:13:18):
I vaguely remember reading this for a completely different study, but certain things about
Smooth Brain Host 1 (00:13:26):
famine and all during pregnancy as well,
Smooth Brain Host 1 (00:13:29):
sort of relating to higher risks of mental health disorders and autism.
Smooth Brain Host 1 (00:13:34):
I was reading it for something else, but I vaguely remember this.
Smooth Brain Host 1 (00:13:36):
Is this also?
Smooth Brain Host 2 (00:13:38):
Yeah.
Dr. Calum Hartley (00:13:39):
So I think that feeds into the idea that maybe prenatal environment could,
Dr. Calum Hartley (00:13:43):
could have an influence and it might be that those kinds of prenatal factors might,
Dr. Calum Hartley (00:13:48):
might well be sort of triggering epigenetic type relationships and effects that are
Dr. Calum Hartley (00:13:53):
going on potentially.
Dr. Calum Hartley (00:13:55):
Oh,
Smooth Brain Host 1 (00:13:56):
So, question, are you, so you're telling me vaccines don't cause autism?
Smooth Brain Host 1 (00:14:02):
I'm absolutely telling you that vaccines don't cause autism.
Smooth Brain Host 1 (00:14:10):
Okay, cool.
Smooth Brain Host 1 (00:14:12):
Neil mentioned,
Smooth Brain Host 1 (00:14:12):
and this was very interesting how you said,
Smooth Brain Host 1 (00:14:14):
how you said like parents are the ones who first sort of detected around the age of two,
Smooth Brain Host 1 (00:14:18):
three.
Smooth Brain Host 1 (00:14:19):
How hard is it to actually differentiate autism at that stage with sort of other
Smooth Brain Host 1 (00:14:24):
behavioral and personality like disorders which we see?
Dr. Calum Hartley (00:14:28):
Yeah, that's a great question.
Dr. Calum Hartley (00:14:30):
And it really varies between individuals, right?
Dr. Calum Hartley (00:14:36):
And just generally, that age of development is really varied anyway, right?
Dr. Calum Hartley (00:14:40):
Kids behave one way at a certain age, the next year they might behave differently.
Dr. Calum Hartley (00:14:44):
And they also vary in terms of just general developmental trajectories for language, right?
Dr. Calum Hartley (00:14:51):
Sometimes you see kids that you classify as late talkers,
Dr. Calum Hartley (00:14:55):
And you might think,
Dr. Calum Hartley (00:14:56):
okay,
Dr. Calum Hartley (00:14:57):
maybe this is a child that is maybe at risk of developing like developmental
Dr. Calum Hartley (00:15:01):
language disorder,
Dr. Calum Hartley (00:15:02):
but a year or two later,
Dr. Calum Hartley (00:15:04):
they're speaking and they've caught up,
Dr. Calum Hartley (00:15:06):
you know,
Dr. Calum Hartley (00:15:06):
you do see that a bit.
Dr. Calum Hartley (00:15:08):
Now, when it comes to autism, it does vary quite substantially.
Dr. Calum Hartley (00:15:14):
Because for individuals where there are really obvious markers,
Dr. Calum Hartley (00:15:21):
really obvious aversion to social interactions or
Dr. Calum Hartley (00:15:28):
really strong repetitive behaviors uh profound difficulties in language and
Dr. Calum Hartley (00:15:35):
intellectual difficulties as well then those cases are typically easier to identify
Dr. Calum Hartley (00:15:43):
than if the person or the individual they have great language skills their
Dr. Calum Hartley (00:15:48):
non-verbal cognition is what you'd expect based on the chronological age
Dr. Calum Hartley (00:15:52):
And for those individuals that haven't got the co-occurring language impairments
Dr. Calum Hartley (00:15:59):
and intellectual difficulties,
Dr. Calum Hartley (00:16:00):
they typically get identified as autistic way later in life.
Dr. Calum Hartley (00:16:05):
Because the sort of cognitive issues make it more salient, more obvious.
Dr. Calum Hartley (00:16:11):
And you see this.
Dr. Calum Hartley (00:16:13):
So I work with quite a lot of autistic university students.
Dr. Calum Hartley (00:16:17):
And almost,
Dr. Calum Hartley (00:16:20):
well,
Dr. Calum Hartley (00:16:20):
yeah,
Dr. Calum Hartley (00:16:20):
invariably,
Dr. Calum Hartley (00:16:21):
they say,
Dr. Calum Hartley (00:16:21):
well,
Dr. Calum Hartley (00:16:22):
I was identified as autistic after the age of 12,
Dr. Calum Hartley (00:16:26):
let's say.
Dr. Calum Hartley (00:16:27):
Or sometimes even back end of high school,
Dr. Calum Hartley (00:16:31):
maybe even when the early days in terms of getting to university.
Dr. Calum Hartley (00:16:35):
because they're able to
Dr. Calum Hartley (00:16:38):
kind of compensate for the characteristics of autism through excellent language skills,
Dr. Calum Hartley (00:16:45):
through developing compensatory strategies.
Dr. Calum Hartley (00:16:48):
And also,
Dr. Calum Hartley (00:16:49):
there's a behavior called masking,
Dr. Calum Hartley (00:16:51):
or in the literature,
Dr. Calum Hartley (00:16:51):
it's called social camouflaging,
Dr. Calum Hartley (00:16:53):
where an autistic individual might purposefully,
Dr. Calum Hartley (00:16:58):
well,
Dr. Calum Hartley (00:16:58):
it can be conscious or unconscious,
Dr. Calum Hartley (00:17:00):
but the outcome is that they suppress their autistic traits and actively present in
Dr. Calum Hartley (00:17:05):
a way to appear neurotypical.
Dr. Calum Hartley (00:17:08):
And you see this more often in the folks who've got really great language skills,
Dr. Calum Hartley (00:17:11):
because it facilitates those compensatory strategies.
Dr. Calum Hartley (00:17:17):
And it's only when a person's environment changes.
Dr. Calum Hartley (00:17:20):
So it might be that when they've been living at home and they've had loads of support,
Dr. Calum Hartley (00:17:26):
those compensatory strategies were effective in helping them get through the
Dr. Calum Hartley (00:17:30):
demands of education and socializing and all that.
Dr. Calum Hartley (00:17:35):
But when that changes, they have to live away from home for the first time.
Dr. Calum Hartley (00:17:38):
The huge changes in routine and environment.
Dr. Calum Hartley (00:17:41):
Sometimes those compensatory strategies are no longer effective.
Dr. Calum Hartley (00:17:45):
And this can lead to the,
Dr. Calum Hartley (00:17:47):
you know,
Dr. Calum Hartley (00:17:47):
autistic behaviors and aspects of cognition being more problematic.
Dr. Calum Hartley (00:17:51):
And this results in the assessment.
Smooth Brain Host 1 (00:17:56):
I guess that flips what Neil had asked about the environment and sort of
Smooth Brain Host 1 (00:18:01):
the environmental component of it being like when you're in an environment which
Smooth Brain Host 1 (00:18:04):
sort of allows you to mask these things you're doing a lot better then the
Smooth Brain Host 1 (00:18:09):
environment completely changes and then yeah when do when do the children first
Smooth Brain Host 2 (00:18:14):
learn to mask because that that feels like it'd be quite a quite an adult skill or
Smooth Brain Host 2 (00:18:19):
something that would take a little while greater just general sort of cognitive
Smooth Brain Host 2 (00:18:24):
ability to be able to pull off really
Dr. Calum Hartley (00:18:28):
Yeah.
Dr. Calum Hartley (00:18:29):
And of course it does require, it requires those language skills.
Dr. Calum Hartley (00:18:33):
It requires the ability to imitate and that sort of social awareness.
Dr. Calum Hartley (00:18:40):
I'm not entirely sure about the evidence regarding the earliest signs at which it emerges,
Dr. Calum Hartley (00:18:47):
but it must be quite early because it contributes to these late diagnoses.
Dr. Calum Hartley (00:18:52):
Yeah.
Dr. Calum Hartley (00:18:54):
And also, we know that social masking varies across genders.
Dr. Calum Hartley (00:18:59):
So we know that autistic females are more likely to engage in masking.
Dr. Calum Hartley (00:19:04):
And that then feeds in to delays in particularly for autistic females actually
Dr. Calum Hartley (00:19:11):
being assessed and diagnosed.
Dr. Calum Hartley (00:19:14):
So one of the characteristics about autism that's sort of
Dr. Calum Hartley (00:19:18):
A common stereotype is it's largely considered to be a male disorder.
Dr. Calum Hartley (00:19:22):
And the gender ratio you often hear is four to one, as in four boys for every one girl.
Dr. Calum Hartley (00:19:28):
When in reality, it might be two to one or maybe even more balanced than that.
Dr. Calum Hartley (00:19:34):
But it's down to the fact that we're just not very good at detecting autism in females,
Dr. Calum Hartley (00:19:39):
knowing what happens.
Dr. Calum Hartley (00:19:40):
what how it manifests and often that a part well partly what contributes to that is
Dr. Calum Hartley (00:19:46):
the presence of social camouflaging in in females that's that's incredibly
Smooth Brain Host 2 (00:19:52):
interesting uh sorry is that general you know in neurotypical individuals as well
Smooth Brain Host 2 (00:19:58):
callum are females generally better at social masking than males
Dr. Calum Hartley (00:20:03):
I mean, that would sort of be the stereotype, wouldn't it?
Dr. Calum Hartley (00:20:06):
That girls are a bit more socially attuned and boys are just active play and I'm
Dr. Calum Hartley (00:20:11):
going to,
Dr. Calum Hartley (00:20:12):
you know,
Dr. Calum Hartley (00:20:12):
play football and rough and tumble and all of that stuff.
Dr. Calum Hartley (00:20:16):
And of course,
Dr. Calum Hartley (00:20:18):
some of those norms,
Dr. Calum Hartley (00:20:19):
those social stereotypes and norms likely influence this kind of issue around assessment.
Dr. Calum Hartley (00:20:27):
So if autistic girls are able to socially camouflage and present themselves in a
Dr. Calum Hartley (00:20:32):
way that neurotypical girls are behaving,
Dr. Calum Hartley (00:20:35):
then yeah,
Dr. Calum Hartley (00:20:37):
maybe they might feel that increased pressure to behave in a certain way in order
Dr. Calum Hartley (00:20:41):
to fit in.
Dr. Calum Hartley (00:20:42):
And then that incentivizes masking.
Smooth Brain Host 1 (00:20:47):
I was just saying when you were talking about the imitative behavior,
Smooth Brain Host 1 (00:20:52):
this is where I get to flex other people who are on the podcast.
Smooth Brain Host 1 (00:20:54):
So a few episodes ago,
Smooth Brain Host 1 (00:20:57):
we had a child development researcher on Frankie Fong who was talking about how
Smooth Brain Host 1 (00:21:02):
imitation in kids across cultures,
Smooth Brain Host 1 (00:21:04):
you see a lot of it around the age of one and a half years,
Smooth Brain Host 1 (00:21:06):
two years.
Smooth Brain Host 1 (00:21:08):
And I'm guessing he was talking about just neurotypical imitation.
Smooth Brain Host 1 (00:21:11):
So there's no necessary reason that imitation should start later, I guess.
Dr. Calum Hartley (00:21:17):
Well, it can do in autistic individuals, for sure.
Dr. Calum Hartley (00:21:22):
Yeah, just generally differences in...
Dr. Calum Hartley (00:21:28):
sort of, yeah, in intentional behavior can vary.
Dr. Calum Hartley (00:21:32):
So neurotypical infants often imitate what they perceive to be intentional behavior
Dr. Calum Hartley (00:21:38):
in what they see in others.
Dr. Calum Hartley (00:21:41):
Whereas autistic individuals sometimes differ in that regard,
Dr. Calum Hartley (00:21:45):
less likely to imitate what they see in others.
Dr. Calum Hartley (00:21:50):
Yeah, I would say, yeah, that's a difference that you do sometimes see.
Smooth Brain Host 2 (00:21:56):
And what's the average age of diagnosis?
Smooth Brain Host 2 (00:21:58):
Because you said it was quite delayed.
Dr. Calum Hartley (00:22:01):
Well, usually it is in early-ish childhood.
Dr. Calum Hartley (00:22:07):
So for cases where it's quite...
Dr. Calum Hartley (00:22:11):
relatively obvious and you might see it between three and five but it varies
Dr. Calum Hartley (00:22:16):
depending on there's a bit of a postcode lottery component to it you know
Dr. Calum Hartley (00:22:21):
assessment services vary in terms of the backlog basically and this can result in
Dr. Calum Hartley (00:22:29):
individuals who are quite clearly autistic
Dr. Calum Hartley (00:22:32):
being delayed in receiving that diagnosis and that can actually be really quite
Dr. Calum Hartley (00:22:37):
negative for that individual because the earlier that they are identified as
Dr. Calum Hartley (00:22:41):
autistic the earlier they can start receiving the support they need whether that be
Dr. Calum Hartley (00:22:45):
financial or appropriate educational interventions and we know that earlier
Dr. Calum Hartley (00:22:53):
The earlier you can start receiving optimal support,
Dr. Calum Hartley (00:22:57):
the better outcomes are likely to be,
Dr. Calum Hartley (00:22:59):
particularly for individuals who have language learning difficulties or
Dr. Calum Hartley (00:23:02):
intellectual difficulties.
Dr. Calum Hartley (00:23:04):
Early you start receiving support, the better things usually go later on.
Dr. Calum Hartley (00:23:10):
But as I said, because autism is a developmental condition,
Dr. Calum Hartley (00:23:18):
By its very definition, we know that it is present from childhood in every case.
Dr. Calum Hartley (00:23:23):
And there are some research studies that record kids' first birthday parties.
Dr. Calum Hartley (00:23:31):
And there's some evidence from those that suggests that you can differentiate
Dr. Calum Hartley (00:23:35):
autistic individuals based on their nonverbal pre-linguistic behavior as early as
Dr. Calum Hartley (00:23:41):
one from these first birthday recordings.
Dr. Calum Hartley (00:23:43):
But that's not the case for every individual,
Dr. Calum Hartley (00:23:45):
because as I say,
Dr. Calum Hartley (00:23:46):
some folks only receive the diagnosis much later on in life.
Smooth Brain Host 1 (00:23:52):
So with all the heterogeneity around autism, how do you go about even sort of studying it?
Smooth Brain Host 1 (00:24:00):
Like, yeah, how would that sort of work?
Dr. Calum Hartley (00:24:04):
Yeah,
Dr. Calum Hartley (00:24:05):
so oftentimes,
Dr. Calum Hartley (00:24:08):
certainly the majority,
Dr. Calum Hartley (00:24:10):
I do quite a lot of diverse research these days,
Dr. Calum Hartley (00:24:13):
but one of my primary areas of research is studying language development,
Dr. Calum Hartley (00:24:17):
particularly acquisition of vocabulary in autistic kids that do struggle to learn language.
Dr. Calum Hartley (00:24:25):
So what we do is we work collaboratively with specialist schools and some
Dr. Calum Hartley (00:24:29):
specialist schools cater specifically for autistic kids.
Dr. Calum Hartley (00:24:33):
They're often the ones that we work with.
Dr. Calum Hartley (00:24:36):
So all of our participants,
Dr. Calum Hartley (00:24:38):
if we go to a specialist school,
Dr. Calum Hartley (00:24:40):
we can recruit children who already have received their assessments.
Dr. Calum Hartley (00:24:44):
And we do try to work with groups that have some consistency.
Dr. Calum Hartley (00:24:51):
So for my work with word learning,
Dr. Calum Hartley (00:24:54):
vocabulary acquisition,
Dr. Calum Hartley (00:24:56):
we work with kids who we know have those delays in language development and trying
Dr. Calum Hartley (00:24:59):
to understand them.
Dr. Calum Hartley (00:25:01):
some of the factors that are contributing to those and try to identify how the
Dr. Calum Hartley (00:25:05):
environment can be altered to better support vocabulary development.
Dr. Calum Hartley (00:25:11):
But equally, I do lots of studies with adults at university as well.
Dr. Calum Hartley (00:25:18):
And whilst they share the same diagnostic label,
Dr. Calum Hartley (00:25:23):
autism spectrum disorder and obviously their profiles are very very different
Dr. Calum Hartley (00:25:28):
you've got these kids at school who um might often be really struggling to speak
Dr. Calum Hartley (00:25:34):
they might not speak at all whereas you have at university you've got these
Dr. Calum Hartley (00:25:39):
exceptionally uh intellectually developed individuals who are studying maths
Smooth Brain Host 2 (00:25:43):
astrophysics all sorts right does that make the doing the experiments difficult
Smooth Brain Host 2 (00:25:49):
callum if you've got such a
Smooth Brain Host 2 (00:25:51):
such a range of subjects, it must be very hard to, I mean, if you, I'm a biologist, right?
Smooth Brain Host 2 (00:25:57):
So a rat is a rat, a Wistar rat is a Wistar rat.
Smooth Brain Host 2 (00:26:00):
They're all gonna behave the same way whatever you do to them.
Smooth Brain Host 2 (00:26:03):
But it sounds like your experimental group is gonna be a wide ranging one.
Dr. Calum Hartley (00:26:09):
That's absolutely the case,
Dr. Calum Hartley (00:26:11):
but we address different questions that are pertinent for different groups of people.
Dr. Calum Hartley (00:26:16):
So the stuff in schools with kids that are minimally verbal or non-speaking,
Dr. Calum Hartley (00:26:22):
we're looking at the very basic mechanics of acquiring vocabulary.
Dr. Calum Hartley (00:26:26):
So how do these children identify the meanings of new words that they hear?
Dr. Calum Hartley (00:26:31):
How do they retain the meanings?
Dr. Calum Hartley (00:26:32):
How do they generalize them?
Dr. Calum Hartley (00:26:35):
Some of the studies we work with with autistic university students were looking at
Dr. Calum Hartley (00:26:39):
different kinds of issues that are more relevant to them.
Dr. Calum Hartley (00:26:42):
So,
Dr. Calum Hartley (00:26:42):
for example,
Dr. Calum Hartley (00:26:43):
one of one of the programmes of research that I'm working on at the moment is
Dr. Calum Hartley (00:26:48):
examining what deceptive communication looks like in autistic adults.
Dr. Calum Hartley (00:26:53):
So an issue that autistic individuals experience in
Dr. Calum Hartley (00:27:00):
the criminal justice system is that they're increasingly likely to be perceived as
Dr. Calum Hartley (00:27:05):
deceptive because there are lots of stereotypical cues to deception that are just
Dr. Calum Hartley (00:27:10):
natural behaviors in autism so aversion to eye gaze being one for example right
Dr. Calum Hartley (00:27:17):
there's a stereotypical idea that if you don't pay you know don't look at someone's
Dr. Calum Hartley (00:27:21):
eyes there's a chance that you're telling a fib right
Dr. Calum Hartley (00:27:24):
And deception detection strategies that are used in forensic settings are informed
Dr. Calum Hartley (00:27:32):
by neurotypical norms about behavior.
Dr. Calum Hartley (00:27:34):
So autistic folks are often misunderstood and at risk.
Dr. Calum Hartley (00:27:39):
And I've worked with a fantastic PhD student,
Dr. Calum Hartley (00:27:42):
Teagan Blackhurst,
Dr. Calum Hartley (00:27:44):
who also were collaborating with Autistica on this project,
Dr. Calum Hartley (00:27:47):
which is the UK's leading autism research charity.
Dr. Calum Hartley (00:27:51):
She is conducting a series of studies that are profiling basically what differences
Dr. Calum Hartley (00:27:58):
in truthful and deceptive communication in autistic adults,
Dr. Calum Hartley (00:28:02):
what they differences in the qualities,
Dr. Calum Hartley (00:28:05):
both nonverbal behavior and like paralinguistic cues.
Smooth Brain Host 2 (00:28:11):
I'm going to stop you there, Callum.
Smooth Brain Host 2 (00:28:13):
Paralinguistic clue, what might that be?
Dr. Calum Hartley (00:28:16):
So paralinguistic cues are aspects of verbal communication that aren't actually the
Dr. Calum Hartley (00:28:22):
meaning of the words that are being said.
Dr. Calum Hartley (00:28:25):
So a couple of the paralinguistic cues that we're interested in is how long it
Dr. Calum Hartley (00:28:31):
takes for people to answer a question in a kind of investigative interview setting.
Dr. Calum Hartley (00:28:38):
How long they have to think about it before they start speaking.
Dr. Calum Hartley (00:28:41):
And like the mean length of their utterances.
Dr. Calum Hartley (00:28:44):
So how long their answers are in response to different kinds of questions.
Dr. Calum Hartley (00:28:50):
Also, you've got differences in pitch as well.
Dr. Calum Hartley (00:28:53):
Sometimes some literature suggests that that's a cue to deception as well.
Dr. Calum Hartley (00:28:58):
So we're profiling these qualities of essentially what deceptive cues look like for
Dr. Calum Hartley (00:29:04):
autistic individuals.
Dr. Calum Hartley (00:29:06):
And one of the key findings from a study that Teagan is writing up at the moment
Dr. Calum Hartley (00:29:11):
and hopefully will be submitting soon is that
Dr. Calum Hartley (00:29:15):
Averted eye gaze is just essentially a predictor of autism rather than a predictor
Dr. Calum Hartley (00:29:20):
of deception.
Dr. Calum Hartley (00:29:22):
So it's not at all useful in terms of detecting deception for autistic individuals.
Dr. Calum Hartley (00:29:29):
But yeah, we're conducting a whole suite of studies around
Dr. Calum Hartley (00:29:33):
know how accurate autistic individuals are at detecting deception as well so the
Dr. Calum Hartley (00:29:38):
idea being that due to differences in social understanding and differences in
Dr. Calum Hartley (00:29:43):
understanding mental states as well that's a characteristic so being able to
Dr. Calum Hartley (00:29:47):
perspective take and maybe understand the intentions of another person that would
Dr. Calum Hartley (00:29:51):
present risks
Dr. Calum Hartley (00:29:53):
of potentially being subject to fraud or manipulation or victimization along those
Dr. Calum Hartley (00:29:58):
lines so are autistic individuals less accurate at detecting deception um and also
Dr. Calum Hartley (00:30:04):
what the label of being autistic means for neurotypical people in terms of
Dr. Calum Hartley (00:30:09):
whether are they more likely to perceive or less likely to perceive autistic
Dr. Calum Hartley (00:30:13):
individuals are deceptive when they are actually being deceptive so yeah we've got
Dr. Calum Hartley (00:30:17):
a whole whole suite of cool studies that we're conducting around this so obviously
Dr. Calum Hartley (00:30:20):
that's a more pertinent issue for that particular you know subset of the autistic
Dr. Calum Hartley (00:30:26):
population because the you know that's
Dr. Calum Hartley (00:30:30):
That's a risk that they're more likely to encounter than studying how they learn
Dr. Calum Hartley (00:30:34):
vocabulary when they already have super developed language skills.
Smooth Brain Host 2 (00:30:38):
Is the justice system kind of aware of this, Callum, or is this actually a problem?
Smooth Brain Host 2 (00:30:43):
There's evidence that miscarriages of justice have been done because of autism
Smooth Brain Host 2 (00:30:49):
rather than any other reason.
Dr. Calum Hartley (00:30:52):
There are certainly plenty of anecdotal reports of unfair treatment within the
Dr. Calum Hartley (00:30:57):
criminal justice system for not just autistic individuals,
Dr. Calum Hartley (00:31:00):
but neurodiverse individuals more broadly,
Dr. Calum Hartley (00:31:03):
folks with ADHD as well,
Dr. Calum Hartley (00:31:04):
for example.
Dr. Calum Hartley (00:31:05):
And we know that training for folks who work in the criminal justice system, both on the sort of
Dr. Calum Hartley (00:31:15):
The legal sort of lawyers and that's,
Dr. Calum Hartley (00:31:19):
but right down to the police receive next to no training around neurodiversity and,
Dr. Calum Hartley (00:31:26):
or make kind of accommodations for when they encounter people who are autistic,
Dr. Calum Hartley (00:31:31):
even though the sort of prevalence of autistic and other neurodiverse individuals
Dr. Calum Hartley (00:31:37):
is actually way higher in populations that make contact with the criminal justice
Dr. Calum Hartley (00:31:41):
system in comparison to their prevalence in the general population.
Dr. Calum Hartley (00:31:46):
So it's a real,
Dr. Calum Hartley (00:31:47):
real area that does need,
Dr. Calum Hartley (00:31:50):
needs investigating needs work in order to actually make a difference and improve
Dr. Calum Hartley (00:31:56):
outcomes for,
Dr. Calum Hartley (00:31:57):
for autistic folks.
Smooth Brain Host 1 (00:32:00):
Yeah.
Smooth Brain Host 1 (00:32:01):
I I'm still sort of blown by the deception thing of you.
Smooth Brain Host 1 (00:32:05):
You're essentially just predicting autism more likely than you are predicting deception.
Smooth Brain Host 1 (00:32:10):
That's that's.
Smooth Brain Host 1 (00:32:12):
pretty big, someone's just looking the other way.
Smooth Brain Host 1 (00:32:15):
And it's also interesting,
Smooth Brain Host 2 (00:32:17):
isn't it,
Smooth Brain Host 2 (00:32:18):
if you're doing it both ways,
Smooth Brain Host 2 (00:32:20):
because if the autistic person can't pick up deception clues from somebody
Smooth Brain Host 2 (00:32:25):
interviewing them over a crime,
Smooth Brain Host 2 (00:32:26):
and then they're looking,
Smooth Brain Host 2 (00:32:27):
they don't get the deception themselves,
Smooth Brain Host 2 (00:32:29):
it's almost doubling the problem,
Smooth Brain Host 2 (00:32:31):
isn't it?
Dr. Calum Hartley (00:32:33):
Yeah, no, for sure.
Dr. Calum Hartley (00:32:34):
And yeah, there's probably education to be done on both sides, really.
Dr. Calum Hartley (00:32:41):
The support for autistic folks who find themselves engaged in the criminal justice system,
Dr. Calum Hartley (00:32:46):
but also really important,
Dr. Calum Hartley (00:32:48):
educating individuals who are on the other side,
Dr. Calum Hartley (00:32:50):
who are kind of doing the investigative interviewing and so on.
Dr. Calum Hartley (00:32:55):
And really just educating in terms of
Dr. Calum Hartley (00:32:58):
You know,
Dr. Calum Hartley (00:32:58):
people's behavior depends on the neurodivergence and what we stereotypically
Dr. Calum Hartley (00:33:04):
consider to be indicative of deception in one group doesn't generalize to other groups.
Smooth Brain Host 1 (00:33:11):
Yeah.
Smooth Brain Host 1 (00:33:11):
And the other thing of are people who are diagnosed with autism more likely to sort
Smooth Brain Host 1 (00:33:19):
of be conned and things like that because you touched upon it.
Smooth Brain Host 1 (00:33:22):
Is this an actual thing or is it a sort of misguided thing around?
Dr. Calum Hartley (00:33:28):
There's evidence,
Dr. Calum Hartley (00:33:29):
of course,
Dr. Calum Hartley (00:33:30):
that folks generally who have intellectual disabilities,
Dr. Calum Hartley (00:33:33):
who maybe rely on support,
Dr. Calum Hartley (00:33:38):
maybe other aspects of their lives where they can't live independently,
Dr. Calum Hartley (00:33:43):
are more subject or more at risk of kind of being conned or,
Dr. Calum Hartley (00:33:48):
excuse me,
Dr. Calum Hartley (00:33:48):
manipulated in some ways.
Dr. Calum Hartley (00:33:51):
And I suppose the issue,
Dr. Calum Hartley (00:33:52):
theoretically speaking,
Dr. Calum Hartley (00:33:53):
is of particular prominence for autistic individuals because we know that there are
Dr. Calum Hartley (00:33:57):
differences in what psychologists call theory of mind,
Dr. Calum Hartley (00:34:03):
which essentially boils down to being able to represent other people's mental states,
Dr. Calum Hartley (00:34:08):
understanding why they're doing the things that they're doing,
Dr. Calum Hartley (00:34:11):
and being able to spot when...
Dr. Calum Hartley (00:34:16):
potentially when they're being deceived.
Dr. Calum Hartley (00:34:18):
Is there any evidence out there that really directly addresses this question?
Dr. Calum Hartley (00:34:23):
Not to my knowledge, but that's why we're doing this.
Dr. Calum Hartley (00:34:26):
That's why we're running one of these studies,
Dr. Calum Hartley (00:34:27):
because we will absolutely get the answer to that question,
Dr. Calum Hartley (00:34:31):
because one of the studies that Tegan's running.
Dr. Calum Hartley (00:34:35):
is presenting both neurotypical and autistic individuals with videos of people
Dr. Calum Hartley (00:34:40):
telling the truth versus telling lies.
Dr. Calum Hartley (00:34:43):
And we're comparing their accuracy in terms of how accurate are they at figuring
Dr. Calum Hartley (00:34:48):
out which is which,
Dr. Calum Hartley (00:34:50):
making veracity judgments.
Dr. Calum Hartley (00:34:52):
And we know that neurotypical individuals are actually really quite bad at this.
Dr. Calum Hartley (00:34:55):
They're usually about chance.
Dr. Calum Hartley (00:34:58):
And if we find that autistic individuals are significantly worse than that,
Dr. Calum Hartley (00:35:04):
then there's your evidence.
Smooth Brain Host 2 (00:35:05):
We're going to look at written deception as well.
Smooth Brain Host 2 (00:35:09):
I was just thinking when Sahil was talking about scams, there's two types, isn't there?
Smooth Brain Host 2 (00:35:12):
There's somebody coming up to you and talking,
Smooth Brain Host 2 (00:35:16):
which I can see where the problem would be if you're autistic.
Smooth Brain Host 2 (00:35:20):
How about the classic Nigerian Prince email?
Smooth Brain Host 2 (00:35:23):
Does that still have the same effect?
Smooth Brain Host 2 (00:35:27):
If there's a language component, do they read that and go, that's a great idea?
Smooth Brain Host 2 (00:35:32):
Or is that the same as the rest of us?
Smooth Brain Host 2 (00:35:34):
Yeah, that's probably not going to happen.
Dr. Calum Hartley (00:35:38):
The phishing scam.
Dr. Calum Hartley (00:35:41):
Yeah.
Dr. Calum Hartley (00:35:43):
Good old Nigerian prince.
Dr. Calum Hartley (00:35:45):
No, I'm not aware of any evidence that speaks to that.
Dr. Calum Hartley (00:35:52):
And again, it would vary between individuals, I suspect.
Dr. Calum Hartley (00:35:57):
So, yeah, it's hard for me to kind of present a clear answer to that, I think.
Smooth Brain Host 2 (00:36:02):
That's all right.
Smooth Brain Host 2 (00:36:03):
Keep doing some research there, Callum.
Dr. Calum Hartley (00:36:05):
Ha!
Dr. Calum Hartley (00:36:07):
I mean,
Dr. Calum Hartley (00:36:07):
it's a really important area that only in the last few years that we started investigating.
Dr. Calum Hartley (00:36:12):
And just this last October,
Dr. Calum Hartley (00:36:15):
we have another PhD student,
Dr. Calum Hartley (00:36:16):
Meg,
Dr. Calum Hartley (00:36:16):
who's looking at similar questions for folks who've got ADHD as well.
Dr. Calum Hartley (00:36:21):
Because,
Dr. Calum Hartley (00:36:21):
again,
Dr. Calum Hartley (00:36:22):
similar story for those guys in relation to the criminal justice system over
Dr. Calum Hartley (00:36:27):
prevalence and kind of misconceptions and increased risk.
Dr. Calum Hartley (00:36:31):
So, yeah, it's an important issue.
Smooth Brain Host 1 (00:36:37):
Well,
Smooth Brain Host 1 (00:36:38):
should we move to the other end of the spectrum now and talk about your work sort
Smooth Brain Host 1 (00:36:42):
of with children,
Smooth Brain Host 1 (00:36:43):
sort of with language learning disabilities or difficulties?
Smooth Brain Host 1 (00:36:47):
Yeah.
Smooth Brain Host 1 (00:36:49):
Yeah.
Smooth Brain Host 1 (00:36:49):
I wanted to ask,
Smooth Brain Host 1 (00:36:51):
Neil had already mentioned,
Smooth Brain Host 1 (00:36:52):
how tough is it to actually sort of do this kind of research?
Smooth Brain Host 1 (00:36:57):
What kind of stuff are you looking at in particular?
Dr. Calum Hartley (00:37:01):
Yeah.
Dr. Calum Hartley (00:37:01):
So you've got to be very careful in how you construct the studies because the way
Dr. Calum Hartley (00:37:09):
you design kind of experimental methods and your selection of,
Dr. Calum Hartley (00:37:14):
say,
Dr. Calum Hartley (00:37:15):
standardized assessments.
Dr. Calum Hartley (00:37:16):
So in addition to doing whatever kind of experimental game that you want to play,
Dr. Calum Hartley (00:37:20):
it's important that you profile your sample as well.
Dr. Calum Hartley (00:37:23):
So you get a good understanding of what their language abilities are like,
Dr. Calum Hartley (00:37:27):
maybe where their nonverbal intelligence is.
Dr. Calum Hartley (00:37:30):
as well as individual differences in autistic traits,
Dr. Calum Hartley (00:37:33):
because your findings for whatever you find really generalize to autistic
Dr. Calum Hartley (00:37:39):
individuals that have similar characteristics as opposed to other characteristics.
Dr. Calum Hartley (00:37:44):
So for our folks,
Dr. Calum Hartley (00:37:46):
when we're working with kids who've got really profound language learning
Dr. Calum Hartley (00:37:50):
difficulties and maybe intellectual disabilities,
Dr. Calum Hartley (00:37:53):
we choose
Dr. Calum Hartley (00:37:55):
assessments that are very visual,
Dr. Calum Hartley (00:37:58):
very active,
Dr. Calum Hartley (00:37:59):
that don't rely on speech on the part of the participant to kind of generate responses,
Dr. Calum Hartley (00:38:06):
unless we're measuring expressive vocabulary.
Dr. Calum Hartley (00:38:08):
And even then,
Dr. Calum Hartley (00:38:09):
if a child can't speak,
Dr. Calum Hartley (00:38:10):
there are measures that we can use that can gauge a child's expressive language
Dr. Calum Hartley (00:38:16):
ability from pre-linguistic
Dr. Calum Hartley (00:38:19):
kind of utterances.
Dr. Calum Hartley (00:38:21):
But lots of our studies at the moment,
Dr. Calum Hartley (00:38:23):
we've kind of developed a cool experimental setup where we have a huge,
Dr. Calum Hartley (00:38:27):
big touchscreen computer and autistic kids,
Dr. Calum Hartley (00:38:31):
as neurotypical kids are too,
Dr. Calum Hartley (00:38:34):
they love touchscreens.
Dr. Calum Hartley (00:38:36):
And particularly for autistic individuals,
Dr. Calum Hartley (00:38:38):
there is a real preference or kind of fascination with screen-based media and often
Dr. Calum Hartley (00:38:45):
touching in that way.
Dr. Calum Hartley (00:38:47):
So we present stimulating images and auditory input through this computer.
Dr. Calum Hartley (00:38:55):
And they often make responses by high-fiving the things that we ask for.
Dr. Calum Hartley (00:39:01):
So a sort of a classic word learning study that we would do
Dr. Calum Hartley (00:39:06):
We might present three images of things on the screen.
Dr. Calum Hartley (00:39:10):
And to begin with,
Dr. Calum Hartley (00:39:11):
if we were teaching them the meaning of a novel word,
Dr. Calum Hartley (00:39:13):
there are lots of different ways of doing this.
Dr. Calum Hartley (00:39:15):
But one way is setting up a situation where a child can use processes of
Dr. Calum Hartley (00:39:20):
elimination so they can use their existing knowledge of language to figure out what
Dr. Calum Hartley (00:39:25):
a new word refers to.
Dr. Calum Hartley (00:39:26):
So you might present three objects on our touch screen.
Dr. Calum Hartley (00:39:30):
And one of them is a weird,
Dr. Calum Hartley (00:39:32):
unfamiliar thing that the child has never seen before and wouldn't have a name for.
Dr. Calum Hartley (00:39:37):
Another one's a cat and another one's a tree.
Dr. Calum Hartley (00:39:40):
And we choose familiar objects in this way to present an environment where we can
Dr. Calum Hartley (00:39:44):
be pretty sure that kids know the names of these things because the age of
Dr. Calum Hartley (00:39:49):
acquisition is like,
Dr. Calum Hartley (00:39:51):
I don't know,
Dr. Calum Hartley (00:39:52):
12 months to 16 months or even lower sometimes.
Dr. Calum Hartley (00:39:55):
So we can assume that the children we're working with,
Dr. Calum Hartley (00:39:57):
even though they might have profound language delay,
Dr. Calum Hartley (00:40:00):
their vocabulary is such that they highly like to know these words.
Dr. Calum Hartley (00:40:04):
So we would then say,
Dr. Calum Hartley (00:40:07):
which is the blicket, touch the blicket, show me the blicket.
Dr. Calum Hartley (00:40:10):
Now they know,
Dr. Calum Hartley (00:40:12):
they don't know the meaning of the word blicket,
Dr. Calum Hartley (00:40:14):
but if they know cat,
Dr. Calum Hartley (00:40:16):
they know the cat's not the blicket.
Dr. Calum Hartley (00:40:17):
And if they know tree, they know the tree's not the blicket.
Dr. Calum Hartley (00:40:20):
So what they're doing is they're applying a lexical or linguistic assumption that
Dr. Calum Hartley (00:40:28):
one word refers to one object,
Dr. Calum Hartley (00:40:30):
and that's called mutual exclusivity.
Dr. Calum Hartley (00:40:32):
And they would correctly identify the weird unfamiliar thing as the blicket.
Dr. Calum Hartley (00:40:37):
And what we find is that in these kinds of situations where autistic kids across
Dr. Calum Hartley (00:40:42):
the spectrum are able to use their existing knowledge of words to figure out the
Dr. Calum Hartley (00:40:47):
meanings of unfamiliar words,
Dr. Calum Hartley (00:40:49):
they're really,
Dr. Calum Hartley (00:40:50):
really good at that.
Dr. Calum Hartley (00:40:52):
So we often present new words in that way.
Dr. Calum Hartley (00:40:55):
And we might teach them, say, four words initially.
Dr. Calum Hartley (00:40:59):
And then we would stop for, say, five minutes.
Dr. Calum Hartley (00:41:02):
They play a game, maybe do some drawing or whatever.
Dr. Calum Hartley (00:41:05):
And we wait five minutes because that gives kids the chance to forget.
Dr. Calum Hartley (00:41:09):
Because figuring out the meaning of a word isn't learning a word.
Dr. Calum Hartley (00:41:12):
It's just disambiguating its meaning.
Dr. Calum Hartley (00:41:15):
So what we do is we wait five minutes.
Dr. Calum Hartley (00:41:17):
That gives them that chance to forget.
Dr. Calum Hartley (00:41:19):
And then we test their attention.
Dr. Calum Hartley (00:41:21):
Have they actually learned?
Dr. Calum Hartley (00:41:22):
Is there something in memory retained about these associations between words and
Dr. Calum Hartley (00:41:28):
the things that they refer to?
Dr. Calum Hartley (00:41:31):
And what we're trying to do is we change that initial learning setup in various
Dr. Calum Hartley (00:41:37):
different ways to try and increase the likelihood of retention.
Dr. Calum Hartley (00:41:40):
How can we present visual and auditory stimuli in a way that helps children
Dr. Calum Hartley (00:41:45):
actually retain those associations?
Dr. Calum Hartley (00:41:49):
And sometimes we also test generalization as well.
Dr. Calum Hartley (00:41:51):
So generalization is the idea that words, many words in a child's vocabulary
Dr. Calum Hartley (00:41:58):
are names for categories of things.
Dr. Calum Hartley (00:42:01):
They don't just refer to one thing.
Dr. Calum Hartley (00:42:02):
So if a child might learn the word cat in association with their family pet at home,
Dr. Calum Hartley (00:42:07):
In order to really understand the meaning of that word,
Dr. Calum Hartley (00:42:09):
they have to understand that it doesn't just refer to a black cat,
Dr. Calum Hartley (00:42:13):
it refers to the tabby cat,
Dr. Calum Hartley (00:42:14):
the ginger cat,
Dr. Calum Hartley (00:42:15):
the picture of a cat in a book,
Dr. Calum Hartley (00:42:17):
right?
Dr. Calum Hartley (00:42:18):
But there are certain visual constraints that determine the rules as to how we generalize words.
Dr. Calum Hartley (00:42:26):
And shape is the key one, right?
Dr. Calum Hartley (00:42:27):
That's a really important one.
Dr. Calum Hartley (00:42:29):
So we often test
Dr. Calum Hartley (00:42:31):
how we can promote shape-based generalization so kids are once they've learned the
Dr. Calum Hartley (00:42:35):
meaning of a word they can start extending it appropriately that's that's
Smooth Brain Host 1 (00:42:42):
incredibly interesting so uh i'm just thinking shape-based stuff like how you would
Smooth Brain Host 1 (00:42:48):
have and sort of orientation based stuff like if you show a cat upside down is it
Smooth Brain Host 1 (00:42:53):
still a cat kind of thing um or i guess a more easier one is for like a cup or a
Smooth Brain Host 1 (00:42:58):
chair because
Smooth Brain Host 1 (00:43:01):
or not easy, ambiguous one is for like a cup or a chair, right?
Smooth Brain Host 1 (00:43:04):
Because in what angle is it still with the same object?
Smooth Brain Host 1 (00:43:09):
If you sort of are trying to categorize them in your mind.
Dr. Calum Hartley (00:43:12):
Yeah, I mean, I'll be honest, I've not tested the ability to learn upside down cats.
Dr. Calum Hartley (00:43:21):
But in some of our studies that we use with tablets,
Dr. Calum Hartley (00:43:26):
one of my former PhD students,
Dr. Calum Hartley (00:43:27):
Lee Keating,
Dr. Calum Hartley (00:43:27):
did this.
Dr. Calum Hartley (00:43:28):
She presented images of unfamiliar objects that rotated.
Dr. Calum Hartley (00:43:31):
So they got a full 360.
Dr. Calum Hartley (00:43:33):
And that was part of the sort of experimental setup and the way we presented
Dr. Calum Hartley (00:43:39):
objects in that study.
Smooth Brain Host 2 (00:43:42):
And is this study with neurotypical people or are you comparing with autism?
Dr. Calum Hartley (00:43:48):
Yeah, so that's how we do things.
Dr. Calum Hartley (00:43:50):
We always draw comparisons.
Dr. Calum Hartley (00:43:54):
And this is one of the sort of points for debate in neurodevelopmental condition
Dr. Calum Hartley (00:43:59):
research is who do you compare against?
Dr. Calum Hartley (00:44:02):
So you've got your population of autistic individuals that have delays in language.
Dr. Calum Hartley (00:44:08):
They might have co-occurring intellectual difficulties as well.
Dr. Calum Hartley (00:44:11):
Do you compare them against kids the same age?
Dr. Calum Hartley (00:44:14):
If you do, you're guaranteed to know the answer to that question.
Dr. Calum Hartley (00:44:18):
The autistic kids aren't going to do as well because of everything else that's
Dr. Calum Hartley (00:44:21):
going on unrelated to autism.
Dr. Calum Hartley (00:44:24):
So they've got these global delays in development and that's your answer.
Dr. Calum Hartley (00:44:29):
That is why they're not doing as well.
Dr. Calum Hartley (00:44:33):
So often what we do, rather than doing that,
Dr. Calum Hartley (00:44:36):
is we compare against ability match groups.
Dr. Calum Hartley (00:44:39):
So we will recruit neurotypical kids who are often chronologically a bit younger,
Dr. Calum Hartley (00:44:43):
but are at the same stage in terms of their vocabulary development.
Dr. Calum Hartley (00:44:47):
And what that allows us to do is to identify whether there are actually any genuine
Dr. Calum Hartley (00:44:51):
differences in the way these mechanisms are functioning.
Dr. Calum Hartley (00:44:55):
Is there differences in the way that autistic kids are learning these words when
Dr. Calum Hartley (00:44:59):
expectations are based on where they're at,
Dr. Calum Hartley (00:45:02):
developmentally speaking?
Smooth Brain Host 1 (00:45:06):
What about comparing them to sort of,
Smooth Brain Host 1 (00:45:10):
because we spoke about autism being a spectrum,
Smooth Brain Host 1 (00:45:12):
kind of comparing sort of kids with autism showing more sort of language
Smooth Brain Host 1 (00:45:16):
difficulties to sort of other difficulties.
Smooth Brain Host 1 (00:45:18):
Do you sort of compare those as well to see if there's any sort of overlap in the
Smooth Brain Host 1 (00:45:23):
color we always had mentioned?
Dr. Calum Hartley (00:45:26):
So do you mean like comparing like autistic kids against kids with like
Dr. Calum Hartley (00:45:32):
developmental language disorder or are we comparing different autistic kids against,
Dr. Calum Hartley (00:45:36):
yeah,
Dr. Calum Hartley (00:45:36):
autistic against autistic?
Smooth Brain Host 1 (00:45:39):
Now that you mentioned that, I was kind of thinking both in my mind.
Smooth Brain Host 1 (00:45:41):
So one to sort of distinguish between developmental language disorder versus an
Smooth Brain Host 1 (00:45:47):
autistic kid with language disorder,
Smooth Brain Host 1 (00:45:49):
sort of language development issues,
Smooth Brain Host 1 (00:45:51):
but then also...
Smooth Brain Host 1 (00:45:53):
if you have a different sample of autistic kids, how does that sort of manifest?
Dr. Calum Hartley (00:45:58):
Well,
Dr. Calum Hartley (00:45:58):
one of the one of the ideas or theories around autism is that the language learning
Dr. Calum Hartley (00:46:05):
difficulties are kind of separate in terms that they're not because they're not a
Dr. Calum Hartley (00:46:10):
diagnosis defining characteristic of autism.
Dr. Calum Hartley (00:46:13):
They might be their own thing and they might have their own their own set of causal factors.
Dr. Calum Hartley (00:46:19):
But actually what you find
Dr. Calum Hartley (00:46:22):
But what we find is that when you present stimuli in the right ways,
Dr. Calum Hartley (00:46:26):
in the favorable ways that play to the kids' strengths,
Dr. Calum Hartley (00:46:30):
autistic kids are usually just as good at learning vocabulary as neurotypical peers
Dr. Calum Hartley (00:46:34):
when expectations are based on the developmental level that they're at.
Dr. Calum Hartley (00:46:40):
The one difference that we do consistently see is that autistic children are slower
Dr. Calum Hartley (00:46:45):
to process verbal and visual input.
Dr. Calum Hartley (00:46:47):
It takes them longer to generate correct responses.
Dr. Calum Hartley (00:46:51):
And on the one hand,
Dr. Calum Hartley (00:46:52):
that's probably indicative of the kind of the global cognitive differences that are
Dr. Calum Hartley (00:46:59):
going on,
Dr. Calum Hartley (00:47:00):
that there are just general differences in the speed of processing information.
Dr. Calum Hartley (00:47:05):
And that wouldn't just apply to linguistic stimuli.
Dr. Calum Hartley (00:47:09):
But what that suggests from a practical point of view is it highlights the
Dr. Calum Hartley (00:47:12):
importance of actually letting kids learn at their own pace and presenting
Dr. Calum Hartley (00:47:15):
information in a way that accommodates for those delays.
Dr. Calum Hartley (00:47:19):
And that's something that we always do in our experiments because the kids that we
Dr. Calum Hartley (00:47:23):
work with,
Dr. Calum Hartley (00:47:23):
they do vary in terms of their attention.
Dr. Calum Hartley (00:47:26):
Sometimes they...
Dr. Calum Hartley (00:47:28):
they will get up,
Dr. Calum Hartley (00:47:28):
they will run around for a bit and then they'll kind of get that burst of energy
Dr. Calum Hartley (00:47:32):
out of their system and then they'll sit back down and they'll play again.
Dr. Calum Hartley (00:47:36):
And that's very much reflective of how they would be in the classroom, right?
Dr. Calum Hartley (00:47:42):
So we do accommodate for children learning at their own pace.
Dr. Calum Hartley (00:47:45):
And on the one hand,
Dr. Calum Hartley (00:47:46):
that's great for us because it shows that,
Dr. Calum Hartley (00:47:48):
yeah,
Dr. Calum Hartley (00:47:48):
these autistic kids are really capable word learners under the right conditions.
Dr. Calum Hartley (00:47:53):
But what it probably means in terms of naturalistic situations is that's a bit more
Dr. Calum Hartley (00:47:58):
problematic because the way in which speech occurs is a lot more rapid and there's
Dr. Calum Hartley (00:48:03):
a lot more distractions.
Dr. Calum Hartley (00:48:04):
There's a lot more noise.
Dr. Calum Hartley (00:48:05):
There's loads going on demanding,
Dr. Calum Hartley (00:48:06):
you know,
Dr. Calum Hartley (00:48:07):
competing demands for attention than our lovely big touchscreen computer that is really,
Dr. Calum Hartley (00:48:13):
you know,
Dr. Calum Hartley (00:48:13):
helping them focus.
Dr. Calum Hartley (00:48:15):
So where I'm at, theoretically speaking at the moment and something I want to test is that
Dr. Calum Hartley (00:48:23):
Really,
Dr. Calum Hartley (00:48:24):
that's what's going on,
Dr. Calum Hartley (00:48:25):
is that in natural learning environments,
Dr. Calum Hartley (00:48:27):
kids,
Dr. Calum Hartley (00:48:27):
the input that they're receiving is different because they're paying attention to
Dr. Calum Hartley (00:48:30):
different things at different times.
Dr. Calum Hartley (00:48:33):
So their sort of multi-sensory experiences are fundamentally different.
Dr. Calum Hartley (00:48:37):
But when you can get them to focus,
Dr. Calum Hartley (00:48:39):
pay attention to the right things at the right times,
Dr. Calum Hartley (00:48:42):
then they're golden and it works.
Smooth Brain Host 2 (00:48:47):
So that's really the teaching strategies, I guess, that teachers need to use.
Smooth Brain Host 2 (00:48:52):
It's not that they're slow or anything.
Smooth Brain Host 2 (00:48:54):
They're absolutely perfectly capable of doing everything they can.
Smooth Brain Host 2 (00:48:57):
They just need a slightly,
Smooth Brain Host 2 (00:48:59):
either a longer processing time or a slightly different approach.
Smooth Brain Host 2 (00:49:02):
And that I guess is something that is missing generally.
Dr. Calum Hartley (00:49:06):
Yeah, yeah, yeah.
Dr. Calum Hartley (00:49:08):
And this is,
Dr. Calum Hartley (00:49:09):
of course,
Dr. Calum Hartley (00:49:10):
in,
Dr. Calum Hartley (00:49:10):
you know,
Dr. Calum Hartley (00:49:11):
we're studying individuals that indisputably do have delays in their development,
Dr. Calum Hartley (00:49:16):
but for the stage that they're at,
Dr. Calum Hartley (00:49:19):
if you present information in the right way,
Dr. Calum Hartley (00:49:21):
they are capable learners.
Smooth Brain Host 1 (00:49:24):
Oh, that's awesome.
Smooth Brain Host 1 (00:49:28):
you mentioned so this also i guess comes under it but you've mentioned a few
Smooth Brain Host 1 (00:49:32):
different misconceptions i guess across uh across these past 45 odd minutes um are
Smooth Brain Host 1 (00:49:40):
there any others uh well the funny one which we laughed about was the vaccines and
Smooth Brain Host 1 (00:49:44):
autism and the genetic aspects of it but then you also spoke about sort of gays and
Smooth Brain Host 1 (00:49:51):
sort of aversion and how that
Smooth Brain Host 1 (00:49:54):
how that's certainly a problem in the criminal justice system we also spoke about
Smooth Brain Host 1 (00:49:57):
what we technically mean when we talk about spectrum are there any other sort of
Smooth Brain Host 1 (00:50:01):
misconceptions which you feel you come across when talking uh yeah i suppose we've
Dr. Calum Hartley (00:50:07):
talked about not a disease um that that's an important one um i suppose one that's
Dr. Calum Hartley (00:50:14):
that might crop up in the in in sort of um
Dr. Calum Hartley (00:50:19):
in the community, I suppose, is around looking for a cure.
Dr. Calum Hartley (00:50:23):
Autism, there's no cure for autism.
Dr. Calum Hartley (00:50:26):
And it isn't something that, for many individuals who are autistic themselves would say,
Dr. Calum Hartley (00:50:35):
we find this concept offensive.
Dr. Calum Hartley (00:50:37):
We don't want to be cured.
Dr. Calum Hartley (00:50:39):
Autism makes us who we are and is special and it's an important part of our identity.
Dr. Calum Hartley (00:50:47):
But to play devil's advocate,
Dr. Calum Hartley (00:50:49):
on the flip side,
Dr. Calum Hartley (00:50:50):
you have carers who are looking after autistic individuals who can't speak,
Dr. Calum Hartley (00:50:53):
who have really challenging intellectual disabilities and might engage in
Dr. Calum Hartley (00:50:59):
self-injurious behavior.
Dr. Calum Hartley (00:51:00):
And for them,
Dr. Calum Hartley (00:51:04):
you know, it's understandable why carers might very much consider autism to be a disability.
Dr. Calum Hartley (00:51:10):
So I suppose what I'm getting at is autism means different things to different people.
Dr. Calum Hartley (00:51:16):
And I think that's okay.
Dr. Calum Hartley (00:51:17):
You know,
Dr. Calum Hartley (00:51:17):
it depends on the characteristics of an autistic individual and how it's impacting
Dr. Calum Hartley (00:51:25):
on their life.
Dr. Calum Hartley (00:51:27):
And I think it's okay for folks to disagree over this because, you know, there are,
Dr. Calum Hartley (00:51:33):
um you know i said there are lots of autistic individuals who are proud to be
Dr. Calum Hartley (00:51:36):
autistic and it's a defining point of of who they are and they they do great things
Dr. Calum Hartley (00:51:42):
educationally professionally um you know but it's important to be mindful but that
Dr. Calum Hartley (00:51:48):
that's not true and that's not the case for all autistic individuals i think that's
Smooth Brain Host 1 (00:51:53):
a very nice way to put it um uh what what was i going to say we often
Smooth Brain Host 1 (00:52:00):
Because I do more neuroscience based research.
Smooth Brain Host 1 (00:52:03):
And so when you sort of doing animal work,
Smooth Brain Host 1 (00:52:07):
you're sort of looking at the symptom and you're only talking about the symptom.
Smooth Brain Host 1 (00:52:10):
And we often have these conversations about how useful labeling something is or
Smooth Brain Host 1 (00:52:15):
labeling something as
Smooth Brain Host 1 (00:52:16):
someone as autistic or labeling someone as they have ADHD or whatever versus the symptom?
Smooth Brain Host 1 (00:52:23):
And should we be treating a symptom versus treating the condition?
Smooth Brain Host 1 (00:52:27):
What is the meaning of the label?
Smooth Brain Host 1 (00:52:28):
Is it like putting someone in a box versus giving them sort of an empowerment by
Smooth Brain Host 1 (00:52:33):
putting a name to it so that they can understand themselves better?
Dr. Calum Hartley (00:52:37):
And that's a really important question,
Dr. Calum Hartley (00:52:39):
actually,
Dr. Calum Hartley (00:52:40):
because,
Dr. Calum Hartley (00:52:41):
of course,
Dr. Calum Hartley (00:52:41):
many of the characteristics across neurodevelopmental conditions overlap.
Dr. Calum Hartley (00:52:46):
And many of them are diagnosed together.
Dr. Calum Hartley (00:52:52):
It's quite rare that I would encounter an autistic individual who is just autistic.
Dr. Calum Hartley (00:52:57):
They would often have other diagnoses as well, whether that be ADHD or OCD or anxiety.
Dr. Calum Hartley (00:53:05):
And we know that,
Dr. Calum Hartley (00:53:06):
yeah,
Dr. Calum Hartley (00:53:06):
like characteristics of ADHD,
Dr. Calum Hartley (00:53:08):
for example,
Dr. Calum Hartley (00:53:10):
differences in executive functioning.
Dr. Calum Hartley (00:53:11):
So kind of skills that are located in the frontal cortex responsible for attention
Dr. Calum Hartley (00:53:19):
and time management and planning and all that stuff.
Dr. Calum Hartley (00:53:23):
Autistic folks also often have difficulties with executive functioning.
Dr. Calum Hartley (00:53:27):
And you see some estimates in studies that up to 50% of autistic individuals also
Dr. Calum Hartley (00:53:33):
will have ADHD.
Dr. Calum Hartley (00:53:35):
So at that point,
Dr. Calum Hartley (00:53:37):
are they overlapping so much that they do represent a shared kind of population
Dr. Calum Hartley (00:53:45):
rather than necessarily being distinct?
Dr. Calum Hartley (00:53:49):
So yeah, it's a really important question around the utility of labels.
Smooth Brain Host 1 (00:53:58):
Awesome.
Smooth Brain Host 1 (00:54:00):
Because we've been recording for about an hour now,
Smooth Brain Host 1 (00:54:03):
I think we'll sort of get into wrapping up with the sort of final question.
Smooth Brain Host 1 (00:54:08):
So I'll first ask Neil if he had any burning questions for Calum.
Smooth Brain Host 2 (00:54:12):
Yeah, I suppose what's the future of autism research?
Smooth Brain Host 2 (00:54:16):
What are the kind of the key things that you would absolutely love to know?
Dr. Calum Hartley (00:54:22):
Great question.
Dr. Calum Hartley (00:54:24):
In general, I think more focus needs to be on...
Dr. Calum Hartley (00:54:31):
the time period of development between childhood and adulthood, I think.
Dr. Calum Hartley (00:54:39):
Often autism is regarded as a childhood condition because often it's identified in childhood.
Dr. Calum Hartley (00:54:47):
And then you have lots of studies working with autistic adults,
Dr. Calum Hartley (00:54:51):
university students predominantly,
Dr. Calum Hartley (00:54:53):
because they're accessible for scientists like myself.
Dr. Calum Hartley (00:54:56):
But there's that middle ground that's sort of secondary school, college,
Dr. Calum Hartley (00:55:02):
that is kind of neglected a little bit.
Dr. Calum Hartley (00:55:06):
And also older adults who are autistic, you almost never see research with older adults.
Dr. Calum Hartley (00:55:12):
And that, yeah, so there's more balanced focus across the lifespan, I would say is important.
Dr. Calum Hartley (00:55:22):
Adults with...
Dr. Calum Hartley (00:55:25):
uh kind of you know language long lifelong language difficulties and intellectual
Dr. Calum Hartley (00:55:30):
difficulties they're a very underserved population as well i would say um and also
Dr. Calum Hartley (00:55:36):
more continuing research around um females who are autistic because as i said
Dr. Calum Hartley (00:55:43):
earlier in the conversation autism is very much regarded as a male condition we
Dr. Calum Hartley (00:55:47):
know tons about it in boys we know how we're pretty effective at detecting it in
Dr. Calum Hartley (00:55:51):
boys
Dr. Calum Hartley (00:55:52):
but we know comparatively little about it in females and we're pretty rubbish in
Dr. Calum Hartley (00:55:56):
detecting it in females.
Dr. Calum Hartley (00:55:57):
So a lot more work needs to be done there to,
Dr. Calum Hartley (00:56:00):
uh,
Dr. Calum Hartley (00:56:00):
yeah,
Dr. Calum Hartley (00:56:00):
to better us better serve autistic females.
Smooth Brain Host 1 (00:56:04):
Um, I guess this, the question which I had, I know you're not a clinician.
Smooth Brain Host 1 (00:56:11):
I know you're a researcher in the space,
Smooth Brain Host 1 (00:56:13):
but I guess you had also mentioned that,
Smooth Brain Host 1 (00:56:16):
uh,
Smooth Brain Host 1 (00:56:17):
sometimes diagnosis really depends on your postcode,
Smooth Brain Host 1 (00:56:19):
like the access you have to,
Smooth Brain Host 1 (00:56:22):
um to help or uh to i guess in the uk the nhs but i guess the same problems would
Smooth Brain Host 1 (00:56:29):
be there around the world what sort of advice or help can you sort of indicate to
Smooth Brain Host 1 (00:56:36):
people because if you know it's a developmental disorder you dictate it you notice
Smooth Brain Host 1 (00:56:40):
it early in life but if you're on a wait list for a year two years that does causes
Smooth Brain Host 1 (00:56:44):
a that can cause a difference so do you know of anything coming up in that regard
Smooth Brain Host 1 (00:56:49):
which is probably
Smooth Brain Host 1 (00:56:50):
targeted or can help people, parents with kids who might be autistic.
Smooth Brain Host 1 (00:56:56):
We don't know, but yeah.
Dr. Calum Hartley (00:57:03):
You preface this question with you're not a practitioner or a clinician,
Dr. Calum Hartley (00:57:07):
which I'm not,
Dr. Calum Hartley (00:57:08):
so it makes it quite difficult for me to answer this question and provide advice.
Dr. Calum Hartley (00:57:14):
I mean, waiting lists, you can't do anything about, unfortunately.
Dr. Calum Hartley (00:57:19):
During that time,
Dr. Calum Hartley (00:57:20):
I suppose the best things to do is to try and present an environment that is as
Dr. Calum Hartley (00:57:29):
supportive and rich and stimulating as you can for the child.
Dr. Calum Hartley (00:57:36):
And try and take advantage of their curiosity.
Dr. Calum Hartley (00:57:40):
Try and take advantage of the things that they are interested in and use those as
Dr. Calum Hartley (00:57:45):
moments of opportunity for learning and for fostering communication.
Dr. Calum Hartley (00:57:50):
We know that that's a strategy that some quite effective interventions employ.
Dr. Calum Hartley (00:57:56):
So if there's any scope for
Dr. Calum Hartley (00:57:59):
employing that in the home and parenting,
Dr. Calum Hartley (00:58:05):
then I suppose that would be my non-expert suggestion on the practical front.
Dr. Calum Hartley (00:58:09):
I mean,
Dr. Calum Hartley (00:58:10):
obviously,
Dr. Calum Hartley (00:58:11):
the research that we do,
Dr. Calum Hartley (00:58:11):
particularly regarding optimizing environmental conditions for helping language learning,
Dr. Calum Hartley (00:58:17):
we're generating scientific knowledge.
Dr. Calum Hartley (00:58:20):
And whilst we know it has utility in a practical sense, we do let
Dr. Calum Hartley (00:58:25):
the people who know their stuff employ that knowledge right so so i i do do i have
Dr. Calum Hartley (00:58:29):
done um you know like professional development uh seminars for like speech and
Dr. Calum Hartley (00:58:34):
language therapists for example i give them the knowledge i don't tell them how to
Smooth Brain Host 1 (00:58:39):
use it i think that's a very important distinction and like yeah no that's awesome
Smooth Brain Host 1 (00:58:47):
because also i guess a lot of people like practitioners and stuff usually don't
Smooth Brain Host 1 (00:58:52):
have time
Smooth Brain Host 1 (00:58:53):
to know what's happening in the latest in terms of research.
Smooth Brain Host 1 (00:58:57):
It's good to sort of have that sort of cross talk a little bit.
Smooth Brain Host 1 (00:59:01):
Awesome.
Smooth Brain Host 1 (00:59:04):
So then Calum from you,
Smooth Brain Host 1 (00:59:05):
is there any sort of final things which we didn't cover,
Smooth Brain Host 1 (00:59:08):
which you'd like to get across?
Smooth Brain Host 1 (00:59:09):
Cause yeah, you were just answering our questions.
Dr. Calum Hartley (00:59:14):
No, I mean, I really enjoyed answering your questions, to be honest.
Dr. Calum Hartley (00:59:17):
And,
Dr. Calum Hartley (00:59:19):
you know,
Dr. Calum Hartley (00:59:19):
I just like to reiterate my thanks for having me and giving me this opportunity to
Dr. Calum Hartley (00:59:25):
speak about autism.
Dr. Calum Hartley (00:59:26):
And ultimately,
Dr. Calum Hartley (00:59:28):
the reason I do what I do is to generate knowledge that might be helpful and might
Dr. Calum Hartley (00:59:33):
be useful and ultimately,
Dr. Calum Hartley (00:59:35):
hopefully improve the well-being for autistic folks.
Dr. Calum Hartley (00:59:41):
And I think scientists need to take every opportunity they can to do things like this,
Dr. Calum Hartley (00:59:46):
really,
Dr. Calum Hartley (00:59:46):
to not just sit in their offices and write papers,
Dr. Calum Hartley (00:59:50):
but to get out there in the world and share what they know in case anyone can
Dr. Calum Hartley (00:59:56):
benefit and help.
Dr. Calum Hartley (00:59:57):
I think it's a really important aspect of our job.
Dr. Calum Hartley (01:00:01):
Awesome.
Dr. Calum Hartley (01:00:02):
So, yeah, final thoughts, Neil?
Smooth Brain Host 2 (01:00:04):
Yeah,
Smooth Brain Host 2 (01:00:04):
I would just 100% reiterate what Calum said from my work of getting people like
Smooth Brain Host 2 (01:00:09):
Callum to come out and talk to the general public or just talk about their research.
Smooth Brain Host 2 (01:00:13):
It's so valuable and so important,
Smooth Brain Host 2 (01:00:16):
not just for those of us getting the knowledge,
Smooth Brain Host 2 (01:00:18):
but also for the researchers to be able to tell it through.
Smooth Brain Host 2 (01:00:21):
So thank you, Callum.
Smooth Brain Host 2 (01:00:22):
It's been really fascinating to sit here and listen.
Smooth Brain Host 2 (01:00:24):
And thank you, Sahir, for inviting me.
Smooth Brain Host 1 (01:00:28):
Thank you so much, guys, for coming on.
Smooth Brain Host 1 (01:00:29):
Thank you, Calum.
Smooth Brain Host 1 (01:00:30):
Thanks, Neil.
Smooth Brain Host 1 (01:00:31):
Thank you, everyone, for listening.
Smooth Brain Host 1 (01:00:34):
the shameless plugs of please do like, subscribe, follow, all those things.
Smooth Brain Host 1 (01:00:40):
Really appreciate it.
Smooth Brain Host 1 (01:00:42):
And yeah,
Smooth Brain Host 1 (01:00:42):
the last question which we ask all our guests is,
Smooth Brain Host 1 (01:00:44):
Calum,
Smooth Brain Host 1 (01:00:45):
if you had any general piece of advice for our listeners,
Smooth Brain Host 1 (01:00:48):
what would it be?
Smooth Brain Host 1 (01:00:52):
It's the toughest question we ask.
Dr. Calum Hartley (01:00:55):
Can I have a minute to think about it?
Smooth Brain Host 1 (01:00:57):
Sure, sure, sure.
Dr. Calum Hartley (01:01:07):
I don't know if this is a good one.
Dr. Calum Hartley (01:01:09):
Develop good habits, I would say.
Dr. Calum Hartley (01:01:11):
I think something that served me well throughout my life is sticking to routines
Dr. Calum Hartley (01:01:18):
and holding myself accountable to those routines.
Dr. Calum Hartley (01:01:21):
So...
Dr. Calum Hartley (01:01:23):
Going back into my history,
Dr. Calum Hartley (01:01:25):
as a child,
Dr. Calum Hartley (01:01:25):
I had a history of playing competitive sports and martial arts,
Dr. Calum Hartley (01:01:29):
and I developed a real sort of sense of,
Dr. Calum Hartley (01:01:32):
yeah,
Dr. Calum Hartley (01:01:33):
sense of discipline and sort of accountability through that.
Dr. Calum Hartley (01:01:36):
And I apply that to my day job, you know, and I...
Dr. Calum Hartley (01:01:41):
Academia is a funny one.
Dr. Calum Hartley (01:01:42):
It gives you tons of flexibility in how you go about working and when you work.
Dr. Calum Hartley (01:01:47):
But I hold myself to a routine.
Dr. Calum Hartley (01:01:49):
I go to bed at sensible times.
Dr. Calum Hartley (01:01:51):
I get up at the same time every day and I get stuff done.
Dr. Calum Hartley (01:01:54):
And that works for me.
Dr. Calum Hartley (01:01:56):
That presents a nice work-life balance.
Smooth Brain Host 1 (01:01:59):
Awesome.
Smooth Brain Host 1 (01:02:00):
Now, awesome.
Smooth Brain Host 1 (01:02:01):
That was great.
Smooth Brain Host 1 (01:02:02):
That's great advice.
Smooth Brain Host 1 (01:02:04):
Again, for one last time, thank you guys so much.
Smooth Brain Host 1 (01:02:06):
And until the next episode, take care.